An Opportunity for Comprehensive Mental Health Reform

Jun. 17, 2015
Rep. Tim Murphy
Rep. Tim Murphy introducing the "Helping Families in Mental Health Crisis Act of 2015" to members
of Congress on June 10
.

 

Representatives Tim Murphy (R-Pa.) and Eddie Bernice Johnson (D-Texas) have introduced HR 2646, the "Helping Families in Mental Health Crisis Act of 2015." This introduction begins a legislative process toward mental health reform, which is long overdue. NAMI has submitted a letter of support to Representatives Murphy and Johnson indicating our appreciation of their leadership and our commitment to work with them to pass comprehensive mental health legislation. 

HR 2646 has many positive aspects, including provisions to improve integration of mental healthcare and physical healthcare in Medicaid, spur early intervention in the treatment of psychosis, improve the use of health information technology in mental health care and provide resources for suicide prevention. HR 2646 also contains provisions designed to improve data collection and outcomes measurement and expand the availability of evidence-based services. It contains provisions to remove discriminatory barriers to acute inpatient treatment in Medicaid and Medicare and it advances enforcement of the mental health insurance parity law as well.

HR 2646 also addresses issues that have generated much discussion within NAMI and other organizations, such as the Health Insurance Portability and Accountability Act (HIPAA) and access to information for caregivers, the role of the Substance Abuse and Mental Health Services Administration (SAMHSA), the Protection and Advocacy System and Assisted Outpatient Treatment (AOT).

We have carefully reviewed the bill and believe it takes a more thoughtful approach to these complex issues. However, we have heard from many of you and are very aware that there are strong, diverse opinions about these issues and some questions about the new provisions. For example, members and leaders have asked questions about the scope of the Protection and Advocacy systems’ jurisdiction under the new "abuse and neglect" standard and whether that includes advocacy for housing and recovery supports, which is an important question that we will seek to clarify as the bill moves forward.

Some of you know the process on Capitol Hill well, but for those who do not, here are next steps. The next stage of the legislative process is a mark-up in committee where the bill gets careful consideration and sometimes amendments are offered. Then, it would go to the floor of the House for a vote.

We also understand that Senators Chris Murphy (D-Conn.) and Bill Cassidy (R-La.) are working on a Senate version of the bill. It is not likely to be identical, but it will address many of the same issues to improve the mental health system for people with serious mental illness. The Senate will also need to carefully consider their bill in committee and then it would be voted on by the Senate. Often the next step is a Conference Committee to reconcile differences between the House and Senate versions of legislation before it goes to both Houses for a final vote. Although it may seem like a long process, NAMI is very hopeful regarding legislative action given that the efforts in both Houses are bipartisan.

This year, we have an unprecedented opportunity to pass legislation to improve mental health services. It is very important that NAMI is at the table as this process ensues. We look forward to continuing our dialogue together because NAMI, more than any other organization, understands that the status quo is unacceptable and needs to change. As the bills work their way through this process, we would like to continue hearing from all of you. If you have thoughts about the bill or mental health reform in general, please email us at MHPolicy@nami.org. I can’t promise you we will have the time to respond to each email but I can promise you that we will read and consider every one carefully.

The hallmark of NAMI is an inclusive community of individuals, families and friends whose lives have been changed by the experience of mental illness. These experiences make us very passionate about these issues. Passion will be important because we will not get mental health reform without it. But passion cannot get in the way of respectful dialogue, understanding and listening to the perspectives of others. Only by talking together and reviewing information with an open mind and in recognition of the ongoing process will we achieve reform that promotes recovery and wellness for all people with mental illness, including those with the most serious conditions.

It is unlikely that all NAMI supporters will agree with all provisions or all changes that have been made to the bill already and those that may be made in the future. But hopefully, we all can get behind the need for comprehensive reform and by working and talking together, we can achieve final legislation that will significantly improve lives.

Before Congressman Murphy focused on these issues, there was little discussion in Congress. Now there is momentum and bipartisan support. NAMI will continue to listen to our members and leaders as the legislative process continues and we will tirelessly work for a better system for those affected by mental illness. We will also continue to communicate regularly with you about the bill and the issues it addresses.

Thank you for your leadership and advocacy!

Comments
J said...
To Lin Lewis: You don't want a Mad person's health care to be between themselves and their clinicians. You want it to be between the Mad person, their clinicians, and their family. Mad people don't want this and regardless of what Congress decides, we will not participate in a health care system that robs us of our rights to keep our medical information private, be protected from illegal seizure, and maintain control over our minds and bodies.

To Kimberly Blaker:

Anosognosia is a red herring. At best, it's solid proof that the mental health system should have no power of any kind over the could-have-been consumers because the system chose to let the health of these people deteriorate when it failed to do its job of showing the consumers how they could have improved their lives with the services that the mental health system had to offer them. At worst, it's not a symptom at all; instead, it's a construct of social control that was cooked up by psychiatrists, politicians, shareholders of the Pharma companies, and the "families of the mentally ill" who teamed up to create an ideology that could successfully exculpate them from formal and informal punishments for unjustly obtaining their various economic and social advantages by committing the barbarous act of forcibly drugging marginalized people.
8/6/2015 12:26:04 AM

Lin Lewis said...
Law making process is length by politicians, while medical decisions are between persons(s) and their physicians. It has taken many years to start the conversation on Mental Illness, quality care and parity. Let's think about why Mental Health Care is treated separately? Why new drugs are not invented to treat mental health conditions? Is mental illness a disability? We need to treat mental illness like any other. Let's start the conversation by coming out the "closet" to discuss mental illness and seek solutions openly and frankly with passion! Yes, I support H. R. 2646.
8/1/2015 8:59:02 PM

Kimberly Blaker said...
I hope that NAMI will support those with serious mental illness who are the most under served by fully supporting HR2646, particularly as it relates to HIPPA and AOT. My son has schizoaffective disorder and is severely disabled as a result. HIPPA has made it difficult to know what is going on with his treatment. Because of his anognosia, AOT has been the only way to get him on treatment. However, in moving to another state, AOT has been nearly impossible where it is rarely used. As a result, his condition has significantly deteriorated over the past year. Those with SMI should be a priority rather than swept under the rug (or more accurately, into the street).
7/28/2015 10:51:30 PM

John Hallowitz said...
Thanks J for pointing out that my original post could have been clearer. To be perfectly clear, I am a strong supporter of this bill. What I was trying to bring out in my original post was how NAMI was claiming to support the author's of the bill, yet it was qualifying that support and doing nothing (and still isn't as far as I can see) to build any support for the bill's passage. This seems to be a deliberate strategy which I can only suppose is aimed at trying to appease both sides of this debate. I think this discussion thread shows that if appeasement was the goal, that strategy is not yet working.
7/15/2015 1:36:19 AM

Justice Ginsburg said...
"This Court emphasises that nothing in the ADA or its implementing regulations condones termination of institutional settings for persons unable to handle or benefit from community settings" 1999 Supreme Court Olmstead Decision
7/14/2015 10:29:19 PM

Sunnyskies said...
Perpetuating the myth that there must continue to be high rates of the "severely mentally ill" whose sole treatment must be tranquilization basically. You know....the ones not functional enough due to outdated treatment to even comment or have voices anymore is a sad state of affairs indeed. I cannot support the closed minds behind this bill. Look at Finlands success......open dialogue....... I want to see this kind of comprehensive reform. Less medication and short term when absolutely neccessary.......learning how to best support and minimize withdrawal. And for the Love of humanity......please stop medicating children with this horribly brain and body changing stuff. Kind programs not false facts and myths please.
7/6/2015 4:49:01 PM

J said...
Take heed NAMI. At the time of this post, the proponents of and opponents of Murphy's Monstrosity on this comments page are:

For: Thomas Spurlock, Marlena Morton, Mary Ellen Jones, Edward A. Olenic, Courtnea, Diana Joyner, Lee Reeder, Madeline Kelley-Schwock, Mark Dryden, DJ Jaffe, Prefer Anonymous This Time, Ilene F. Wells, Caroline Ehrlich, LouAnn Bieck, Michael Ballard, Jan Winter, Ellen Chiswell, Dena Charvat, David Hamilton, Kay Washko, Cathy Rospotynski, Randy Conyers, Bob Nassauer

Against: Amy Lyne, J, Mark Jacques, Elissa Knich, Leslie

Not Sure: Larry DeAngelo, John Hallowitz


Out of the people in favor of this bill, at least 12 of them (Kay, Dena, Ellen, LouAnn, Courtnea, Caroline, Ilene, "Prefer", Madeline, Diana, Mary Ellen, and Thomas) are family members or close friends of Mad people who, by wanting to repeal the legal safeguards for their rights to privacy and bodily autonomy, are very likely to have a long history of abusing and discriminating against their Mad relatives and friends, if their support of this bill is an example of the ways in which they usually interact with them. The Mad people who support this bill (Randy, Cathy, Michael, Mark, and Marlena) could set up a pro-force psychiatric system for themselves without eliminating the right of Mad people to a psychiatric system that is pro-choice. To achieve this, the legalization of Ulysses Aggreements would provide a legal, humane, flexible, individualized, and affordable way for people to ensure that their medical needs are met when they cannot speak and act for themselves. No one who won't suffer the physical, emotional, and social damage that results from being an inpatient or an outpatient inmate of the mental "health" system should be able to inflict the damage that results from these deprivations of liberty on anyone under any circumstances except those that are the most imminently threatening to human life or safety. It needs to be EXCEEDINGLY difficult for friends and family members to drug up, shock up, or lock up each other.
7/6/2015 2:50:25 AM

Bob Nassauer said...
We must support passage of this bill. Even though it will contain imperfections it is the only way things will start to improve. This is a watershed moment.
7/1/2015 8:30:11 AM

Randy Conyers said...
On 2646, my belief is that of Mary Giliberti and the NAMI National Office. I have been “hands on” with 2646 and the prior bill 3717. After many pro/con conversations with NAMI members, it must be clearly realized the bill has a priority with those people classified as having a Severe Mental Illness, SMI. Others who have a mental health diagnosis are considered secondary. Functioning consumers are confused by the bill. It is not specific to this population. Those who have a severe mental illness most likely won’t be reading or making comment on 2646, but are the ones where their families need help the most. It wasn’t until the past 60 days did SAMHSA make a distinction between people who have a severe mental illness and those people who have a mental health diagnosis. I have the manic/depressive Bipolar disorder, yet with medication I can function in many ways. I understand that some of my peer’s lives are so severe their needs come before mine.
6/30/2015 10:15:18 PM

Cathy Rospotynski said...
As a person with a mental illness for most of my life it is encouraging to see action being taken to help people like me. I found NAMI when I was first diagnosed and volunteered for a few years when I was not working. It really helped me have a place to go and learn about my illness and the system. I became involved in our counties mental health board and served as the President of a group for members with an illness that were advocates as well. I look forward to hearing more on this bill.
6/30/2015 8:36:25 PM

Larry DeAngelo said...
This posting has upset many people in recovery throughout NAMI. One has to read this very carefully not to conclude that the posting is a blanket endorsement of the HR 2646 in its present form. The process of NAMI (our national organization) establishing a NAMI position on legislation is not very well defined and certainly not visible to NAMI Affiliates.

I would ask Ms Gilberti to work harder to reach out to NAMI State organizations and Affiliates and find common ground. NAMI postings and releases should be crystal clear on what parts of the legislation we support and what parts we want changed.

Larry DeAngelo
President, NAMI MetroWest
6/29/2015 11:20:23 AM

Kay Washko said...
My son is currently in a voluntary assisted outpatient treatment, but it has taken him 4 years to get there, as well as an initial involuntary 302 commitment. These have been difficult years, watching him deteriorate with our hands tied to help. Our whole family lived in fear and anxiety, knowing that society is not kind to people with severe mental illness and that one mis-step might end with homelessness or jail for our loved one. It shouldn't have to be this hard!! I am in support of any legislation which addresses and supports the needs of the mental health community. Social workers and practitioners in this field are stretched so very thin yet try to do their best. It is truly a heartbreaking scenario where any small bit of progress must be celebrated as a victory!
6/29/2015 8:33:36 AM

David Hamilton said...
I support ......
6/28/2015 1:01:38 PM

Dena Charvat said...
I would certainly support a Mandatory Outpatient Treatment option. My son has been living with me for the past three years. During this time I have realized that he has Schizophrenia. He refuses to get a job, refuses to apply for Social Security, overeats continuously, refuses to clean up after himself, is surly and abusive, and refuses to leave my home. I feel like a prisoner in my own home, but cannot bring myself to evict him-yet. Options?
6/28/2015 11:13:58 AM

ellen chiswell said...
I have a very close friend with a serious mental health issue. She had been well for about 30 years but a change in her mdication due to kidney issues sent her into a severe depression and psychosis. It is impossible to get any help unless she becomes a threat to herself and others. It is so sad to watch this happen and your hands are tied. At best , she would only get a 72 hour hold and is skilled enough with the system to get through that. No parity and hippa resttictions prevent any intervention until she does something serious enough. The jails have become our new mental health facilities.
6/26/2015 4:52:43 AM

Elissa Kinch said...
I am appalled that NAMI did not even mention in its letter to the sponsors the irresponsibility of limiting PAIMI organizations. PAIMI organizations are essential partners in protecting mentally ill individuals from discrimination. As the only real spokespeople for many with mental illnesses, they should NOT be prohibited in speaking to legislators or anyone else. This bill also exempts AOT from the scrutiny it deserves and prohibits PAIMI organizations from representing the wishes of their clients if their "caregiver" disagrees with them. I am ashamed of NAMI for writing this letter.
6/25/2015 10:57:07 PM

Jan Winter said...
I support this effort to bring SAMSA into line with evidence-based practices and increased focus on services for the most severely ill among us who can't speak for themselves.
6/25/2015 5:38:02 PM

Michael Ballard said...
As someone that has personally dealt with mental health issues for most of my adult life, it is refreshing to at least be talking about mental health reform. For years it seems like the only news I have received about any kind of reform has been to reduce or remove programs which are actually helping people like me. If it were not for some of these programs I doubt seriously I would be here today. I look forward to learning more about this bill and doing what I can do to help promote it. Please continue to keep us informed about the bill and if anyone has suggestions on what I could do to help please write. Thanks Mike
6/25/2015 4:20:35 PM

LouAnn Bieck said...
I have also been involved with several loved ones/immediate family and we now have lost my 40 yr old son. I do believe with the correct help & programs his life could have been saved. I once heard a wise parent say-"the beginning of Wisdom is calling things by their right name..." Only in this will we truly be able to identify and help those who are forced to try to survive in this world without proper medical care and support. .We never give up. I support Tim Murphy's bill also. Thank you-Mother & Mental Health Advocate
6/25/2015 2:41:57 PM

Caroline Ehrlich said...
I am very supportive of the need for this comprehensive bill, particularly AOT. While I totally support the parity part, most or at least many of the mental health recipients are on Medicaid and Medicare through their SSI and SSDI benefits, and my hope is these programs stay strong with no cuts. Without access to Medicaid and/or Medicare, more mental health beds in hospitals, more mental health rehabilitation facilities, accessibility to food stamps, and subsidized housing, the future of many of our mentally ill loved ones will be dim. I have a son who has been in the California mental health system for almost a dozen years and he has been able to get the treatment he needed under California's MHSA programs.
6/25/2015 2:05:23 PM

Marc Jacques said...
New bill would counter key values and provisions of the Americans with Disabilities Act
June 16, 2015 (Washington, DC) – The House Energy and Commerce Committee held a hearing today on the Helping Families in Mental Health Crisis Act of 2015 (H.R. 2646), introduced on June 4 by Reps. Tim Murphy (R-PA) and Eddie Bernice Johnson (D-TX). Groups across the disability and civil rights communities were deeply opposed to the 2013 version of the bill, which had numerous controversial provisions that would negatively impact the civil and privacy rights of persons with psychiatric disabilities. The new bill includes few changes to those concerning provisions.
“We couldn’t agree more with Reps. Murphy and Johnson that the nation’s mental health system is broken,” said President and CEO Robert Bernstein. “However, the Americans with Disabilities Act (ADA) and the Supreme Court’s decision in Olmstead v. LC have been important drivers of positive change, creating responsive, accessible community-based services that reduce mental health crises resulting in hospitalizations, police involvement or incarceration. H.R. 2646 not only fails to build upon these precedents, but in many ways it takes us in the wrong direction.” Bernstein said.
The bill continues to promote institutional and coercive approaches to inpatient and outpatient treatment instead of investment in effective community-based mental health services. It would also eliminate or drastically cut millions of dollars from important programs overseen by the Substance Abuse and Mental Health Services Administration (SAMHSA).
“We already know what works,” said Jennifer Mathis, Deputy Legal Director. “Proven programs such as supportive housing, Assertive Community Treatment (ACT), peer support, mobile crisis services, and supported employment have extremely successful outcomes, including for people with the most significant mental health needs. The problem is that these services are not widely available to people who need them. This bill would make it even more difficult to take these services to scale, as it would invest mental health dollars elsewhere,” Mathis said.
The bill makes discriminatory changes to the Health Insurance Portability and Accountability Act (HIPAA), reducing the privacy rights of individuals with mental illnesses and discouraging them from seeking treatment.

The bill would also eliminate much of the critical work that the Protection and Advocacy for Individuals with Mental Illness (PAIMI) program does. Protection and Advocacy (P & A) agencies have been responsible for significant improvements in mental health systems across the country. H.R. 2646 would strip them of most of their authority. The bill would prohibit the PAIMI program from providing advocacy and legal representation to help people with mental illness with a host of important issues, including housing, employment, education, community living, Medicaid benefits. Advocacy concerning anything other than abuse and neglect would be barred.
“As we near the 25th anniversary of the ADA, we urge Congress to reaffirm the ADA’s goal of providing people with psychiatric disabilities access to responsive, effective services in the community and to reject any legislation that would undermine that goal, ” said Alison Barkoff, Director of Advocacy.

This current bill does not include the 85% cut to PAIMI program funding or the "no unauthorized program" language found in the last version of the bill. However, it does include program activity restrictions and other provisions that would eliminate and overly restrict a lot of the work done by our nations P&As. These restrictions include:
Restricting the PAIMI program to only provide advocacy in situations of abuse and neglect;

Barring PAIMI advocates from raising concerns with decisions made by doctors, families, or guardians of people with mental illness;

Requiring the PAIMI program to ensure that caregivers (undefined) have access to the protected health information of an individual with a psychiatric disability; 

Creating a new grievance procedure on top of the current grievance procedure that is mandated by existing statute; and

Prohibiting PAIMI recipient agencies from using any funds, even private donations, for lobbying activities.



The national network of Protection & Advocacy (P&A) organizations have been assisting children and adults with psychiatric disabilities and their families since 1986 under the PAIMI program, to prevent abuse and neglect, ensure access to the services and supports, and protect civil and human rights. Government rating systems like the Program Assessment Rating Tool (PART), and independent studies, e.g. from the Human Services Research Institute, have found the PAIMI program to be effective and having a major impact on protecting the rights of persons with disabilities.



My State's P&A - Disability Rights North Carolina has operated as North Carolina’s P&A since 2007; it was previously known as Carolina Legal Assistance, which had a long history as an independent, private non-profit disability law project advocating for people with mental disabilities in North Carolina.



In 2014, Disability Rights organizations used PAIMI funding to:

Review reports of individuals who died while residing in state-operated or state-licensed facilities;

Investigate allegations of abuse, neglect, and/or death in state-operated or state-licensed facilities;

Provide advocacy and/or self-advocacy assistance regarding the right to be free from abuse and neglect to 151 individuals residing in state-operated or state-licensed facilities;

Provide technical assistance on mental health issue to non-clients (i.e. agency personnel, family members, advocates);

Represent or provide self-advocacy assistance to individuals with mental illness regarding access to housing, education, employment, and the community.

In addition, Protection and Advocacy Organizations used the knowledge gained through its work under the PAIMI grant to help elected and appointed officials to understand the rights of people with mental illness.


If the restrictions proposed by this legislation are enacted, protection and advocacy organizations like Disability Rights North Carolina would not be able to work towards positive outcomes like advising and representing individuals in matters related to discrimination in employment, higher education, or housing.
6/25/2015 10:22:26 AM

Ilene F Wells said...
I am very pleased that NAMI is supporting HR2646, the Helping Families in Mental Health Crisis Act. This is a big step forward, to improve the treatment for the most seriously ill, whose needs have been ignored for too long.

Murphy's bill would open a pathway to ensure the 4% who are the most seriously ill, are not keot at the back of the line for treatment. As we see in the headlines, that only leads to homelessness, incarceration and death.

That is a price too high for our society to pay.

Thank you

Ilene Flannery Wells
6/25/2015 12:06:44 AM

Leslie said...
Will the person with mental illness have privacy or will family get involved with a treatment plan without their consent
6/24/2015 11:38:16 PM

Prefer anonymous this time said...
I support the bill 100%. I also expect NAMI to put everything it has into pushing it forward as it currently stands: pro-AOT, pro-HIPAA clarifications, etc. Families have got to be free from the legal hurdles so they can get their loved ones care when they are too ill to choose it for themselves (i.e., psychosis).

It is absolute malpractice and disgrace that I cannot intervene on my relative's behalf when he is psychotic, and yet, psychosis destroys cognitive brain function. Not treating psychosis is akin to standing by and doing nothing when someone has a heart attack or stroke. How can we let this go on?!?!?!
6/24/2015 9:45:04 PM

DJ Jaffe said...
I strongly support the NAMI Policy on Involuntary and Court Ordered Treatment which endorses the use of AOT. NAMI's Official Policy is at http://www2.nami.org/Content/ContentGroups/Policy/Updates/Involuntary_Commitment_And_Court-Ordered_Treatment.htm . This is the only NAMI policy put to a vote of the entire membership and after that, the NAMI Board. It was supported by both overwhelmingly. NAMI should support the will of its members and indicate it supports the Assisted Outpatient Treatment provisions of the Helping Families in Mental Health Crisis Act as they further the NAMI Policy
6/24/2015 9:10:10 PM

mark dryden said...
This law really does need to implemented. I have had had helthcare people in physical care make fun of me for having bipolar disorder
6/24/2015 7:56:31 PM

amy lyne said...
Maybe if psychiatry and hospitals were not abusive we wouldn't need to criminalize mental illness to get people to go.

Be real, people avoid the hospital for a reason.

Why do we never talk about the abuses behind psychiatry's closed and locked doors ?
6/24/2015 5:10:20 PM

John Hallowitz said...
When will there be an action alert asking members and supporters to contact their Senators and Representatives in support of this critical legislation? Words of support for leadership without supporting what that leadership is doing are meaningless at best and disingenuous at worst. Exactly what is the deal breaker? Mixed messages like the above are not productive. "We support this legislation, but we don't support this legislation." "We thank you for your leadership, but no thanks for your leadership." What kind of "chop logic" is this? Leading means being out in front on issues and showing the way forward. When divisive issues come up, we should try to resolve differences, but that can only be done when individuals and organizations take clear stands.
6/24/2015 3:18:53 PM

J said...
Consumers and survivors of mainstream and pro-force psychiatry do NOT support this bill. Mad in America has a petition that people can sign, anonymously if they so choose, in opposition to this bill. (madinamerica.com) NAMI needs to change its name to "National Alliance of the Former Family Members of Mad People or "NAFFMMP". This organization was founded by the "former family members" of Mad people to further their sanist agendas at the expense of their former relative's civil rights. Apparently, that's NAMI's goal despite the fact that it extends token membership to a handful of Mad people. I will never return to the mental health systems for care if Murphy's Monstrosity becomes law. Force and coercion make recovery from any illness impossible.
6/23/2015 9:46:38 PM

amy lyne said...
Forced drugging "take these pills that make you feel sick tired and bored with life or get assaulted and raped with a needle" is a violation of human rights.

Wow being accused of mental illness in the USA will get even better.


If NAMI truly is the voice of the mentally ill they will oppose this bill.
6/20/2015 4:44:26 PM

madeline kelley-schwoch said...
My family receives treatment from Veterans. As a family to family teacher and trainer I hear such sad stories of how broken our system of mental health treatment in Texas is. I hope this legislation will help improve our treatment and on going support for those families who struggle to get help for their family members.
6/20/2015 3:41:49 PM

Lee Reeder said...
This is an important bill guys especially after the shootings in Charleston, SC last night as we need a total overhaul of the mental health system in this country. Certain states as well need it especially Illinois with what Bruce Rauner is trying to do & I hope this bill passes ASAP
6/19/2015 11:23:57 PM

Diana Joyner said...
I also had a family member with mental illness. My sister died last year from suicide as a result of Bi-polar disorder. She may not have died if there had been adequate care available. I am strongly supportive of this bill. I would be willing to offer my story if needed to support passage.
6/19/2015 8:24:47 PM

Courtnea said...
New York state is sadly lacking in care for the mentally I'll. I am mentally ill and receiving care and I am fairly well managed. I have an adult son who is not being managed, and I have struggled for three years to get him the care he needs. he has Medicaid, since he never had insurance when he was working, and now he cannot work, we are fighting to get him disability for not only bi polar mental illness but a long term disability with a work related back injury. We deerate to get him the help he needs ( but feels guilty to ask for) and I fear my demise before he gets settled. I also have a daughter with a traumatic brain injury, who is also disabled and unable to get disability for her ailments. Any all help would be appreciated.
6/19/2015 8:20:44 PM

Edward A Olenic said...
I support the bill. Thank you for your advocacy.
6/18/2015 5:13:11 PM

Mary Ellen Jones said...
I also support HR 2646 and expect NAMI to do likewise. As the parent of a person with severe mental illness, I have experienced the frustration of HIPPA and the benefits of AOT (court-ordered outpatient treatment here in Oklahoma).
6/18/2015 4:01:37 PM

Marlena Morton said...
As a person with schizoaffective disorder I support provisions to make it easier for my family to force me into the hospital if they think I need to go. Does the bill assist in this effort?
6/18/2015 2:48:58 PM

Thomas Spurlock said...
I feel this bill is the most comprehensive bill I have seen in the last 25 years I have been involved with a loved on with a severe mental illness. The Assisted Outpatient Treatment portion of the bill, know as Mandatory Outpatient Treatment in Virginia, has helped my love one get back into society when nothing tried in the past has even come close to helping him. I support Tim Murphy's bill and would expect NAMI to whole heartedly support the bill also.
6/18/2015 11:39:39 AM

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